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Professional Guidance: Safe Clinical Holding in Dental Services for Challenging Behavior, Lecture notes of Communication

Guidance for dental practitioners on the use of clinical holding skills to support the delivery of safe and effective dental care to patients whose behavior may limit the ability of the dental team to effectively deliver treatment or present a safety risk. The document emphasizes the importance of non-physical and non-intrusive strategies, the legal framework for using clinical holding for patients without capacity, and the need for organizational policies, training, and risk assessments.

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British Society for Disability and Oral Health
Unlocking Barriers to Care
Guidelines for
‘Clinical Holding’ Skills for Dental Services
for people unable to comply with routine oral health care
June 2009
Edited by Chris Stirling and Mark West
These guidelines have been updated and developed with support and contributions from Selina Master,
Karen Gordon, Ken Dalley, Michelle Golding, June Nunn, Janet Richardson, Sue Greening and Kathy
Wilson and are an adjunct to:
BRITISH SOCIETY FOR DISABILITY AND ORAL HEALTH original Policy Document:
PRINCIPLES ON INTERVENTION FOR PEOPLE UNABLE TO COMPLY WITH ROUTINE DENTAL CARE
(1)
Prepared by June Nunn, Sue Greening, Kathy Wilson, Karen Gordon, Barbara Hylton and Janet Griffiths
This revised edition endeavours to take account of further developments in the field and to build on the existing
framework of good practice in relation to physical interventions and the range of non physical preventative
measures that exist in order to deliver safe and effective treatment to patients.
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British Society for Disability and Oral Health

Unlocking Barriers to Care

Guidelines for

‘Clinical Holding’ Skills for Dental Services

for people unable to comply with routine oral health care

June 2009

Edited by Chris Stirling and Mark West

These guidelines have been updated and developed with support and contributions from Selina Master,

Karen Gordon, Ken Dalley, Michelle Golding, June Nunn, Janet Richardson, Sue Greening and Kathy

Wilson and are an adjunct to:

BRITISH SOCIETY FOR DISABILITY AND ORAL HEALTH original Policy Document:

PRINCIPLES ON INTERVENTION FOR PEOPLE UNABLE TO COMPLY WITH ROUTINE DENTAL CARE (1)

Prepared by June Nunn, Sue Greening, Kathy Wilson, Karen Gordon, Barbara Hylton and Janet Griffiths

This revised edition endeavours to take account of further developments in the field and to build on the existing framework of good practice in relation to physical interventions and the range of non physical preventative measures that exist in order to deliver safe and effective treatment to patients.

CONTENTS

  • Introduction PAGE
  • 1.0. Definitions
  • 2.0. Summary Statement
  • 3.0. Context and Rationale
  • 4.0. Legal and Professional Context
  • 5.0. Risks
  • 6.0. Training
  • 7.0. Practical Approaches
  • 8.0. Post-Treatment Management
  • APPENDIX 1: Case Study Examples of Good Practice
  • APPENDIX 2: Capacity to Consent (Flow Chart for England and Wales)
  • APPENDIX 3: Capacity to Consent (Flow Chart for Scotland)
  • APPENDIX 4: Example of Communication Plan
  • References 21-

practitioners to deliver safe and effective treatment. Importantly, these guidelines are founded upon and are congruent with current standards of professional practice in dentistry:

  • the impact of oral ill-health on the patient’s quality of life can be profound. Good oral health has positive benefits for health, dignity, self esteem, social integration and general nutrition 14, 15, 16;
  • healthcare professionals providing dental care and treatment share common values and a commitment to working within the law, adherence of accepted clinical and professional standards and above all, operating within the best interests of the service user 14, 15;
  • everyone has a right to equal access and equal standards of health and care 16, 17;
  • everyone has a right to autonomy in relation to decisions about their healthcare, or have the right to have as much help as possible to make such decisions 16, 17;
  • any treatment should only be carried out with due consideration to the patient’s best interests and represent the least restrictive and detrimental option 11, 18, 19, 20, 21, 26;
  • everyone has a right to be safe 22, 23; and
  • practitioners should work in a manner that promotes the long term well-being and interests of patients in order to address health inequalities of some patient groups and to deliver improved health outcomes 18, 19, 24.

The principles outlined must be communicated to all members of the multi-professional team managing and delivering the patient’s treatment, as well as patient’s relatives and advocates, in order to support a positive and proactive approach to oral health care rather than merely authorising ways of managing difficult patient behaviour. Clinical holding should be used as infrequently as possible and used in the best interest of the patient in order to deliver appropriate treatment outcomes whilst at the same time ensuring that the patient’s sense of dignity is fully maintained.

3. Context and Rationale

The context for this guidance relates to those situations where a clinical team has determined that a patient’s assessment or course of treatment cannot be carried out effectively and/or safely as a result of the behaviour presented by the patient. Whilst it is acknowledged that in real-life situations there are numerous factors that may influence the patient’s behaviour and the level of risk such behaviour may present during oral examination or treatment, it is the professional responsibility of the Dentist, Dental staff, or other staff members involved in undertaking the treatment to consider their own general conduct and give due diligence to any decision to initiate, continue or cease using clinical holding. In general, such behaviour or risk is uncommon but may typically arise in patients who lack capacity or may be unable to comply due to their personal characteristics. For example, clinical holding may be appropriate when treating:

  • some patients with learning disabilities and/or autistic spectrum disorder;
  • some patients with dementia;
  • some patients with mental ill health;
  • some patients with degenerative conditions, (e.g., Huntington’s disease or Multiple Sclerosis) ;
  • some patients with involuntary movements or an inability to control their movement, (e.g. Cerebral Palsy, Parkinson’s disease) ;
  • some severely anxious patients;
  • some patients who lack capacity and lack the ability to understand and cooperate with a specific clinical intervention or treatment; and
  • some patients with specific medical conditions, (e.g., CVA, brain tumour, acquired brain injury).

The issue of concern relating to patients who are unable to comply with routine treatment is more often about the safe delivery, rather than the appropriateness of the specific oral health care required. Clearly, practitioners have

a duty of care to ensure that identified care and treatment is provided in an effective and safe way. In this respect, the decision to use clinical holding must be considered alongside a range of other issues and consequently, in order to meet the current standards of professional practice, the use of non-physical and non- intrusive strategies must remain the preferred approach to support treatment. Therefore, when considering the use of clinical holding, a number of factors must be addressed through the patient’s treatment plan including:

  • there will be known triggers for behaviour change in some patients which will help practitioners to make decisions which specifically relate to each patient at the time the treatment is carried out;
  • the timing of appointments, medication and other aspects of daily routine may be crucial in delivering effective treatment outcomes for some patients;
  • the use of augmentative techniques (such as relaxation techniques, music therapy, embedded commands etc) may be beneficial with some patients in gaining improved cooperation;
  • acclimatisation, behaviour modification and consistency may improve compliance for some patients and therefore remove the need for clinical holding; and
  • compliance from the patient may not be consistent or predictable and may vary with different procedures on different days or with different carers or professionals present. A particular approach to treatment today may not be an appropriate approach with regard to the next course of treatment the patient requires.
  • appropriate communication strategies to maximise opportunities for care

Notwithstanding the above, there may be occasions where typical strategies for some patients have failed or are not appropriate and the use of clinical holding may be considered acceptable in order to ensure the patient receives appropriate or necessary treatment. In terms of the application to practice, clinical holding should only take place in the following circumstances:

(a) Where a patient explicitly consents

A patient with capacity may require physical assistance or support, or may behave in a manner that presents a safety risk to self or others (e.g. an anxious patient who repeatedly brings his/her hands up to their mouth or attempts to hold the practitioners hands). In such circumstances, clinical holding may be appropriate to support the patient during the course of treatment. Clearly, the procedure must have been discussed with the patient prior to treatment taking place and the patient must have provided informed consent 25. Importantly in such scenarios, the patient can withdraw consent at any time and the use of clinical holding should be terminated immediately.

(b) Where a patient lacks capacity to consent

A patient without capacity may require physical assistance or support, or may behave in a manner that presents a safety risk to self or others (e.g., a patient with profound learning disabilities who attempts to bite during an oral examination). In accordance with the Mental Capacity Act; the Adults with Incapacity (Scotland) Act; and accepted professional practice 11,^ 25,^ 26,^ 27,^ 28,^ 29,^30 , a patient without capacity may require personal care, healthcare or treatment which is in their best interests (e.g. a patient with dementia has a suspected oral tumour but will not allow any attempts to conduct an oral examination). In such circumstances clinical holding may be agreed as an appropriate part of the treatment plan to deliver dental care by dental staff provided that it is agreed in accordance with the Mental Capacity Act Code of Practice and represents the least restrictive and detrimental course of action.

(c) Unplanned emergencies, where any patient presents significant risk

It may be reasonable under common law to use clinical holding with any patient (with or without capacity) as an emergency response to any situation where their behaviour represents an immediate or significant risk to

  • the need to support and encourage the patient to participate as fully as possible in any decision or action affecting him or her;
  • the views of other people whom it is appropriate and practical to consult with about the patient’s wishes and feelings and what would be in his or her best interests; and
  • whether the outcome(s) of the proposed treatment can be satisfactorily achieved using less restrictive practices.

With regard to children and young people, the Children Act 32 and Children (Scotland) Act 33 makes the interests of any child the paramount concern and in addition to the above assessment considerations, a number of other factors are relevant e.g. the child’s age and level of understanding; any harm that might occur (now or in the future) as a result of the delivery of treatment or failure to do so; the capability of the parent/carer to support the treatment plan to its conclusion. The Court of Appeal has clarified that any decision to use specific interventions or treatment lies with the medical or dental professional and constitutes ‘best interests’ when:

‘It follows from the decision that a patient is not competent to refuse treatment that such

treatment may have to be given against her continued objection if it is in her best interests that

the treatment be given, despite those objections. The extent of force or compulsion, which may

become necessary, can only be judged in each individual case and by the health professional. It

may become for them a balance between continuing treatment, which is forcibly opposed, and

deciding not to continue with it. A clinical decision.’ (cited Bridgman and Wilson, 2000 33 )

Taking this point into account, whilst a legal and professional framework can guide practitioners in their broader understanding of the issues and factors for consideration, any decision to use clinical holding (whether planned, or for emergency use) will ultimately be a clinical one based upon the presenting situation at the time as assessed by the treating practitioner(s).

(c) Informed Consent

The principle of gaining informed consent from all patients (or in the case of children, their parents) prior to treatment is a fundamental part of medical practice 34 and ensures that practitioners do not act in a manner which may be considered unprofessional or unlawful. A patient’s ability to give informed consent is based upon their capacity to understand the benefits and risks associated with the proposed treatment and thus, make a decision as to whether or not they wish to proceed. The principle of informed consent is important as it ensures that:

  • the patient is provided with the necessary information about the proposed treatment
  • the patient understands the information provided
  • the decision is made by the patient (or in the case of children, their parents) and accounts for their wishes
  • treatment is only provided in accordance with the patient’s wishes, even if the patient’s decision is viewed by practitioners as contrary to their best interests

Within dental practice, a patient is considered to have given informed consent when they sit in the dental chair and begin to co-operate with the necessary examination and/or procedure. As such, there is often a degree to which informed consent is assumed by the dental team, based upon their observation, knowledge and experience of the patient 27 , or inferred by the patient through their compliance. Importantly, informed consent is only valid as long as the patient’s consent continues i.e. at any time during the treatment the patient retains the right to withdraw such consent. Consequently, it is good practice to gain informed consent (verbal, nonverbal or written) for all irreversible treatments as well as sedation or general anaesthesia once the patient has been provided with all the information about the treatment and they have had time to consider their decision 35, 36.

In such circumstances, the validity of consent is not dependant on the form in which it is given. Whilst it is common practice to ask the patient to sign a consent form, a signature on a consent form does not in itself prove the consent is valid since the purpose of the form is to demonstrate that a discussion has taken place 36, 37, 38. In circumstances where a patient cannot sign a form or may lack capacity (see below), a protocol should require that the discussion is clearly documented in the patient’s notes, including the names of any witnesses accompanying the patient.

(d) Mental Capacity Legislation

The principle of informed consent is guided by the assumption that individual patients have the capacity to provide such consent, or in the case of children, capacity can be gained by proxy from a legal parent or guardian. However, where there are doubts about an adult’s ability to provide consent, recent legislation and guidance 11, 12, 25, 27, 29, 30 (^) sets out a framework that guides practitioners in relation to making decisions on behalf of adults who

lack capacity. Dental practitioners are expected to work in accordance with the prevailing legislation to ensure that their decision-making promotes and protects the rights of vulnerable patients who may not be considered to have the capacity to make informed judgements in some circumstances. In addition, any assessment of capacity must consider whether the patient can understand the information; whether they are able to retain the information; whether they are able to use or assess the information to make their decision; and whether they are able to communicate their decision. In this respect, the following key points are crucial to treatment decisions and treatment plans relating to a patient without capacity:

  • patients who lack capacity remain the focus of any decisions made, or action taken, on their behalf;
  • an individual approach is taken which centres around the best interests of the patient and not the views or convenience of those who offer support;
  • vulnerable patients are protected and involved in as many decisions as possible;
  • patients must be assumed to have capacity unless it is established that they do not;
  • a patient is not considered as being unable to make an informed decision unless all practicable steps to help them to do so have been taken without success;
  • a patient is not considered unable to make informed decisions merely because their decisions are unwise; and
  • when taking action or reaching a decision, the least restrictive intervention must be made to minimise the impact on the patient’s rights and freedom of choice.

In order to comply with legislation, the starting point for decision making must be from the perspective that the patient has capacity and therefore, should provide informal or formal consent for the use of clinical holding in order to enable any treatment to be carried out. For a patient to be considered as lacking capacity 11 , evidence must be provided and recorded to establish that:

  • the patient has an impairment of, or disturbance in, the functioning of the brain; and
  • the impairment or disturbance in functioning is sufficient that the person lacks the ability to make a particular decision at the time it needs to be made.

In Scotland, where an individual is judged to lack capacity to consent, a Certificate of Incapacity should be completed if appropriate and an agreed care plan developed. Consequently, if a dental practitioner provides any clinical assessment or treatment that involves the use of clinical holding for a person who lacks capacity, a ‘lawful excuse’ or ‘authority to treat’ for providing the treatment in the absence of the patient’s informed consent exists within the legislation (under the Adults with Incapacity (Scotland) Act, the authority to treat requires the issuing of a certificate of incapacity unless the urgency of the situation makes this impossible) provided that:

  • it is established that the patient lacks capacity;

one to help with the decision, and the decision affects a major aspect if their life. Take everything into account

  • Gather information from all perspectives and form a judgement which balances the benefits and risks to the patient

(e) Statutory Guidance

In recent years, statutory guidance relating to the use of restrictive physical interventions has been issued to provide a clear framework and a set of guiding principles. Whilst not specifically aimed at the use of clinical holding, or patients who require special care dental intervention, such guidance is aimed at those vulnerable individuals (children and adults) who sometimes present to dental services. Consequently, the use of any physical strategies should be commensurate with such guidance (in both planned and unplanned situations) and requires dental practitioners to make defensible decisions that are based upon the following principles:

  • a clear organisational policy framework has been implemented in order to protect vulnerable patients from the misuse or abuse of clinical holding, and practitioners from undue levels of professional or physical risk (e.g. litigation or trauma). Any emergency use of clinical holding must be accounted for within the organisational policy framework 2, 3, 4, 5;
  • the existence of organisational approval and guidance for the use of clinical holding i.e. an organisational risk assessment and authorisation of the specific interventions that practitioners are authorised and expected to use in certain circumstances 2, 3, 4;
  • the use of clinical holding should be subject to risk assessment in order to ensure that a consideration can be made as to the level of risk such strategies may pose to the individual patients and the dental team 2 ;
  • those Dental practitioners who may be required to use clinical holding should receive training (both basic and update training) which is nationally accredited 5, 6;
  • the use of clinical holding should represent a last resort where all other non-physical methods have been considered, used and found to be ineffective 2, 3, 8, 9, 12;
  • clinical holding should always be used alongside, and in conjunction with, other non-physical approaches;
  • the least restrictive method(s) should be used 2, 4;
  • clinical holding should only be used to manage the risks associated with a patient’s behaviour and not to force compliance with treatment 20, 21;
  • clinical holding should be part of an individual treatment plan which has ordinarily been agreed by the patient 26, 28; and
  • the use of clinical holding should be recorded along with any injuries that may arise from such use 5 ;

(f) The right to be safe

Everyone has a right to be safe. This includes the patient receiving treatment as well as those members of the dental team working with them. In situations where a patient’s behaviour poses a risk to themselves or others, or in situations where a patient assaults a member of the dental team, the emergency use of clinical holding may be justified to prevent or minimise harm. However, within the professional and legal frameworks, interventions must be proportional to the amount of harm or risk presented i.e. the least amount of force is used for the minimum amount of time.

5. Risks

The delivery of oral care and treatment is not without risk to the patient. Many factors may contribute to the level of risk (e.g. the nature of the procedure) and might be exacerbated by the individual profile of the patient, particularly those patients with poor health profiles and/or existing medical conditions. It is not unusual for some patients who present in special care dentistry to have some pre-existing co-morbid condition(s) which may impact on the level of risk associated with the use of clinical holding e.g. epilepsy, obesity, heart conditions. Whilst there have been some reported restraint-related deaths within the U.K. 34 , these do not reflect the context in which clinical holding skills are taught or expected to be used. Nevertheless, it is important that all members of the dental team are aware of the general risks associated with the use of any physical holding skills and that such interventions are implemented in a manner that safeguards the patient and minimises risk. In the main, the greatest risks in relation to physical holding techniques arise from:

  • Soft tissue injury (skin, muscles, ligaments, tendons)
  • Articular or bony injury (joint and bones)
  • Respiratory restriction (this includes all 3 aspects of the respiratory function: airway, intercostals activity, and gaseous exchange).
  • Cardiovascular restriction (including the heart and the peripheral vascular system)
  • Psychological distress

Given that any physical holding technique can present a degree of risk, it is important that any use of intervention takes account of the level of risk for each individual patient, on each occasions of use. This individualised method is important in order to ensure that individual risk factors for each patient are unaccounted for, and to reduce the likelihood of clinical holding becoming custom and practice. Importantly, once the decision is reached to use clinical holding in a planned way (or in an emergency) practitioners must continually monitor and assess the efficacy and presenting risks associated with the procedure. If at any time, the patient becomes distressed, withdraws their consent, or there is concern expressed by staff, the intervention should be discontinued. Although non-exhaustive, table 2 outlines factors which should result in a discontinuation of clinical holding.

Table 2: Reasons to discontinue clinical holding

  • When the patient withdraws consent unless: (a) they lack capacity and the decision to use clinical holding has been agreed; or (b) the situation is an emergency and it is necessary to safeguard the patient or others from serious harm;
  • When the patient shows signs of extreme psychological distress/anxiety;
  • When the patient indicates (verbally or non-verbally) that a particular hold is causing pain or discomfort;
  • When the patient shows signs of respiratory compromise;
  • When the patient shows signs of circulatory compromise;
  • When the patient vomits;
  • When the patient has a seizure or convulsion; 6. Training

The effectiveness of any policy or guidance on the use of restrictive physical interventions is dependent upon the knowledge and skill of practitioners to apply the agreed interventions within a practice framework. Successful implementation of the organisational policy guidance is therefore, reliant on ensuring that key personnel receive appropriate training that is ‘fit for purpose’. This guidance cannot determine the specific interventions that might

the discussion, planning and the development of individual patient treatment plans helps to guide collaborative and safe practice, there will always be a degree of professional subjective judgement and decision making each time clinical holding is used.

In order to ensure that any intervention is applied within a clinical context in a safe manner, the staff resources should be commensurate with the level of support required or risk that needs to be managed. Whilst it is usual for the dentist to have a dental nurse, therapist or hygienist to assist with treatment, the professional application of clinical holding may require two or more people in order to be applied safely. In many situations parents and carers are often well placed to assist, not only in terms of providing information about the patient, but to provide assistance to support or hold the patient e.g. by the hand. However, parents or carers should not be asked to apply any specific approved technique because they have not received appropriate training and therefore may act in ways that are not compatible with the professional and safe holding of the patient. Whilst the involvement of parents or carers is typically an individual decision for each patient and dental practitioner, it is good practice to ensure that only those staff who have undertaken the specific training, and are thereby authorised to use such interventions by their employing organisation, engage in the application of clinical holding.

8. Post-Treatment Management

Post-treatment management can be viewed from three interdependent perspectives:

(a) Care and support - the need to manage the physical and psychological well being of the patient and those people involved in the application of the holding:

Understandably, the use of clinical holding can become distressing for the patient and practitioners especially in situations where the patient is held in a restrictive manner. Regardless of any legal or professional justification, it is possible that some patients and practitioners may experience physical and/or psychological trauma. This important acknowledgement requires that every effort should be made to minimise the potential negative impact from the use of any intervention by ensuring that both patients and practitioners have an appropriate level of support post-treatment. Whilst busy dental clinics may not be suitable places for appropriate support to be provided organisations, nevertheless have an obligation to consider how individual patients’ and staff can be supported.

(b) Record keeping - the need to accurately report and document what occurred:

As with all patient treatment, it is important that the use of clinical holding is fully documented, not only within the patient’s individual dental plan as part of the planned decision making process, but also after each intervention. Accurate records not only demonstrate due diligence by practitioners, they can be used to evidence compliance with statutory or regulatory requirements, can help inform future decisions about the patient’s treatment, and can also be used establish trends and patterns in terms of effective or ineffective strategies.

The Joint Guidance 5 states that the use of all physical interventions (whether planned or unplanned) should be recorded as quickly as practicable, in any event within 24 hours of the incident occurring, by the person (s) involved. Specifically the written record should include:

  • the names of staff and the patient involved;
  • the reason for using clinical holding rather than another strategy;
  • the type of intervention employed;
  • the date and duration of the intervention; and
  • whether the patient or anyone else involved, sustained injury or distress and any action taken as a result.

Record keeping is also essential in terms of the wider organisational strategies aimed at preventing the misuse or abuse of physical interventions as well as safeguarding vulnerable children, young people and adults.

(c) Engagement and learning - the need to include the patient and appropriate others in a review and evaluation of the event, ensuring that any learning gained from the intervention is used to improve the future care and treatment of the patient, or service provision:

In additional to organisational policy on the use of clinical holding, robust recording mechanisms should help to provide evidence that effective outcomes are being delivered and any areas of poor practice are quickly addressed. Key to post-treatment management is the need to establish mechanisms whereby the process and outcomes of treatment is used to inform and improve the future treatment of the patient, and/or service provision.

Case Study 3 Peter

Peter has early onset dementia and lives at home with his wife and daughter, who are his main carers. Peter’s wife is concerned about his oral health. He has lost many of his personal care skills and is no longer able to brush his own teeth. Although his wife attends to most of his personal care needs at present, Peter is often unwilling to let her brush his teeth without some degree of difficulty or struggle. Peter gets easily distressed, pushes her away or holds onto her hands to prevent her from placing the toothbrush in his mouth.

Peter’s wife is very concerned about his oral health and she feels that she has reached a dilemma. She feels that if she continues to try and brush his teeth in the current manner, she may hurt him or make him angry and therefore less willing to accept any future attempts. She is also concerned that she does not neglect Peter’s oral health and is asking the dental team what can be done.

In discussion, it emerges that Peter’s level of cooperation changes throughout the day. He is usually more cooperative in the morning, but his level of compliance diminishes after breakfast and is lost almost entirely by the evening. It is agreed that his wife should concentrate on brushing Peter’s teeth in the morning when he is most cooperative or tolerant of her support and that she should still encourage him to brush his own teeth as much as possible (when he is willing) using a ‘hand on hand’ technique. It is also recommended that a ‘Superbrush’ or Collis Curve, with the facility to brush three surfaces at the same time, may expedite effective oral hygiene. Peter’s wife is shown how to do this and is also shown how her daughter may help by limiting Peter’s hand/arm movements so that his wife can brush his teeth in a safer manner without the fear of Peter hitting her.

Case Study 4 Shazir

Shazir is 22 and has severe learning disabilities and lives in a residential home for young adults. She is brought into surgery because her carers think she may have a problem with her teeth because she has been slapping the side of her face and crying which the carers describe as ‘unusual’. Examination is very difficult and Shazir is very uncooperative. It is likely that she has not received any oral care for a number of years and has a generally neglected mouth. There are heavy deposits of calculus both supra and sub-gingival and she has a fractured premolar tooth. During the examination, the carers offer to ‘hold her down’ as they say this is frequently require when attending to all her personal care needs.. The dentist is concerned that Shazir is extremely frightened by the clinic room and the examination, and also has a possible phobia – her eyes are wide and she makes constant noises of distress. The carers feel that she would benefit from a general anaesthetic so that she can have the appropriate treatment as quickly as possible and offer to hold her down.

The dentist decides not to progress with any further treatment at this point since any attempts at scaling are likely to be ineffectual. There is also some concern that the carers at the residential home may not be adequately attempting to assist Shazir with her daily oral hygiene and thus maintain in-surgery efforts to provide effective treatment. There is also concern that the carers may be making an assumption that she is hitting her face because of a problem with her teeth rather than consider other factors which may be affecting her behaviour.

An appointment is made with the manager of the residential home, the carers, Shazir’s next of kin and the dental team to discuss plans for her long term oral care.

Case Study 5 Robert

Robert has cerebral palsy and attends regularly for check up. His movements are athetoid, characterised by involuntary movements of his fingers, hands, toes and feet as well as uncontrolled movements of his arms. Robert’s speech is also severe affected and although it is quite difficult to understand him, he refuses to use and augmentative communication methods. Although he wife usually accompanies him to the surgery, he can get quite angry if she attempts to explain what he is saying to others and as such, over a period of time, the dental team and become quite skilled in understanding him.

During his last course of treatment, his movements were particularly uncontrolled and there was a point where the dental team were concerned that the treatment could not be performed safely. A discussion was held with Robert whom requested that the dental team hold his hand and arms to prevent him accidentally hitting the dentist. The dental team were concerned about holding Robert, partly because of the concern they may injury him because of his cerebral palsy and partly because they felt it was difficult to always understand him and they would not be able to understand his requests to stop if the procedure became uncomfortable for him. After further discussion, it was agreed that the team would hold Robert, but only during treatment, and that his wife would always be present as she could fully understand Robert’s speech. The team also agreed that they would stop what they were doing if Robert made any request to do so or made any vocalisation. This was to enable everyone to check that Robert was feeling comfortable and that he was still providing consent for the staff to continue to hold him. The discussion was documented in his notes and the treatment was carried out successfully.

Case Study 6 James

James has brain injury following an accident at work. This has left him with some changes to his personality (he has become disinhibited, will shout, swear, and use foul or abusive language) as well as some physical weakness to his left arm and leg. He is no longer able to attend to his day to day personal care needs and is at risk because he does not appear to comprehend danger. Sadly, his wife left him due to the pressure of providing full time care and James is now divorced. James is now in a long term care but still maintains regular contact with his parents. Since his accident, it has been very difficult to provide James with appropriate oral care at home and in the surgery. He will not allow his carers to brush his teeth at all, and is totally uncooperative with the dental team who have been unable to undertake an oral examination for some time. Recently, James has been very unsettled and is refusing to eat. His face has a slight swelling and his carers feel that he may have an abscess or other oral problem. James has been prescribed pain killers and antibiotics by his G.P. but this does not appear to have helped, particularly as it is very difficult for the carers to encourage James to take his medication.

Initially the dental team attempt to examine James, but as before this proves unsuccessful. A best interests meeting is held and following discussions with his carers and parents it is agreed to conduct a full oral examination under a general aesthetic so that immediate treatment can be provided. The carers raise concern that James is likely to be very uncooperative during the anaesthetic, so it is agreed to use some clinical holding techniques to prevent James from harming himself or others. Specific techniques are identified and demonstrated to his parents

Appendix 2: Capacity to Consent (Flow Chart for England and Wales)

Yes No

Does the person provide consent to treatment?

  • Verbal/Non-verbal or Written

Is oral treatment required as an emergency?

Yes No

Undertake oral treatment

Defer oral treatment

Is clinical holding required?

Yes No

Asses the patient’s needs and identify and agree the specific clinical holding intervention required

Clarify and record that the patient consents to the use of clinical holds

Undertake oral treatment

Yes

Does the patient consent to the use of clinical holding?

No

Defer oral treatment

Modify the treatment plan or abandon treatment

No Yes

Discuss with family carers and members of the dental team and reach a ‘best interests’ decision which complies with chapter 5 of the MCA Code of practice

Undertake agreed oral treatment

Defer oral treatment until a ‘best interest’ meeting can be held

Identify who needs to be part of the ‘best interest’ meeting in order to ensure everyone’s views can be considered.

Document the decision, including the reason the particular course of treatment was decided. Include any decision to use clinical holding as well as the specific clinical holding intervention required

Does the patient have capacity to consent in accordance with the MCA?

Document ‘best interest’ decision in patient’s notes

Undertake agreed oral treatment

Does everyone agree with the decision reached?

Yes No Seek a second opinion which may involve:

  • An advocate
  • an IMCA
  • Court of Protection

Modify the treatment plan or abandon treatment

Appendix 3: Capacity to Consent (Flow Chart for Scotland)