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Brief guides are a learning resource for CQC inspectors. They provide information, references, links to professional guidance, legal requirements or recognised best practice guidance about particular topics in order to assist inspection teams. They do not provide guidance to registered persons about complying with any of the regulations made pursuant to s 20 of the Health and Social Care Act 2008 nor are they further indicators of assessment pursuant to s 46 of the Health and Social Care Act 2008.
Brief guide BG004: Brief guide: capacity and competence in under 18s, July 2019 Review date: July 2020
Brief guide: capacity and competence to consent in under 18s
Context
Assessing the ability of children and young people under 18 years to make decisions about their care is an integral part of the work in child and adolescent mental health services (CAMHS). A number of key policy documents, listed in the appendices, relate to this issue. In this document we have used the term child to refer to anyone under the age of 18. Guidance on definitions of capacity and Gillick competence can be found in appendix A.
Evidence required
Look for evidence that staff have received training in assessing capacity and competency for informed consent and in the Mental Capacity Act (MCA). Specifically look for training in issues relating to consent in under 18s as well as understanding information sharing with respect to safeguarding children and working with other agencies.
Evidence that valid consent to treatment has been obtained should always be recorded. Valid consent to treatment means that the medical professional has given the child and/or those with parental responsibility appropriate information about the purpose and nature of treatment, including any risks and any alternatives. Evidence in the record, or gathered at interview, may include:
- Giving children and parents information about the reason for and nature of the treatment.
- Giving child-friendly information leaflets about different treatments and what they involve.
- Asking children for their views about treatment before starting treatment.
- Getting session-by-session feedback on treatment sessions.
- Discussing with the child and/or parents other options available and the advantages/disadvantages of each option if symptoms are not improving.
Where the child is deemed to be Gillick competent, and they are able to give consent to treatment, it is still good practice to provide parents with information and this should be documented in the clinical record. The extent of information shared should be discussed with the child and their agreement sought (see below under information sharing). Where there are safeguarding concerns, information may need to be shared with parents in the absence of agreement.
Where a child is not Gillick competent and a parent(s) is consenting to treatment on their behalf, parent(s) must be given information about the nature and purpose of treatment and this must be documented in the clinical record.
Information sharing
Parents generally need to be provided with information about their child’s problems and treatment in order to adequately support and care for them. Check the clinical records to see whether there is evidence of a discussion with the child, and where appropriate their parent(s), about information sharing and confidentiality and the limits of confidentiality. The extent and nature of the discussion will vary according to the age of the child and the nature of treatment as some treatments, for example family therapy, directly involve the parents, whereas others such as medication or individual counselling involve the child. Where information is shared with parents about the problems or treatment of a competent child, the child’s agreement to share the information should be obtained and evidence recorded in the notes. The agreement should be absolutely clear and should cover the specific detail of what will be shared, the reason the information is being shared, as well as any special aspects of the processing that may affect the individual. It should also be freely given, for example without undue influence from the parents.
Where a competent child refuses to allow information to be shared with their parent(s), there should be evidence that the risks of not sharing the information have been considered. Where it is thought to be in the child’s best interests to share information, there should be evidence of attempts to seek a compromise. It is sometimes possible to provide parent(s) with general information about the treatment or condition as a compromise, rather than the specific details of the child’s case. Where it is the clinician’s opinion that it is
Brief guides are a learning resource for CQC inspectors. They provide information, references, links to professional guidance, legal requirements or recognised best practice guidance about particular topics in order to assist inspection teams. They do not provide guidance to registered persons about complying with any of the regulations made pursuant to s 20 of the Health and Social Care Act 2008 nor are they further indicators of assessment pursuant to s 46 of the Health and Social Care Act 2008.
Brief guide BG004: Brief guide: capacity and competence in under 18s, July 2019 Review date: July 2020
necessary to share information in the best interests of the competent child, against their wishes, the Caldicott Guardian should be consulted.
Treatment refusal: where the child/parent refuses treatment, there should be evidence in the records that risks have been considered and explored. This includes whether refusal may result in significant harm to the child and that safeguarding concerns have been considered. The case records should document fully what decisions were made and why, including when the decision relates to hospital admission and whether the use of the Mental Health Act would have been appropriate or not.
Complex cases : wherever possible for more complex cases, such as those involving disagreements about treatment, there should be evidence of discussion with colleagues and the offer of a second opinion (this should be proportionate to the circumstances of the case).
I ntelligence
There are sections relating to capacity and consent in CAMHS in the Quality Network for Inpatient CAMHS and Quality Network for Community CAMHS peer review and accreditation schemes. If the trust is participating in these schemes, the reports should be available from intelligence.
Policy
In UK law, a person's 18th birthday draws the line between childhood and adulthood (Children Act
1989 s105), so in health care matters, an 18 year old enjoys as much autonomy as any other adult.
To a more limited extent, 16 and 17 year-olds can also take medical decisions independently of their parents. The right of younger children to provide independent consent is proportionate to their competence, a child's age alone is clearly an unreliable predictor of his or her competence to make decisions.
Young people aged 16 or 17 are presumed in UK law, like adults, to have the capacity to consent to medical treatment. However, unlike adults, their refusal of treatment can, in some circumstances be overridden by a parent, someone with parental responsibility or a court. This is because we have an overriding duty to act in the best interests of a child. This would include circumstances where refusal would likely lead to death, severe permanent injury or irreversible mental or physical harm.
If there are reasons to believe a child aged 16 or over lacks capacity, an assessment of capacity to consent should be conducted and recorded in their notes.
Children under 16 may be competent to consent to treatment (Gillick competence) and records should show that this has been assessed before starting treatment. The routine assessment of competence in under 16s should be appropriate to the child’s age. For example, routine assessments of competence would not be expected in the case of eight and nine-year-olds but would be more usual for children aged 14 and 15. Where treatment is going ahead on the basis of parental consent, records should show that the person(s) holding parental responsibility and legally capable of consenting on behalf of the child has been identified
Reporting
Issues relating to capacity and consent in under 18s should be reported in the ‘ Good practice in applying the Mental Capacity Act’ section of the ‘ Effective ’ key question.
Link to regulations
Failure to comply with guidance and legislation in this area would fall under Regulation 11 – Need for Consent.
Brief guides are a learning resource for CQC inspectors. They provide information, references, links to professional guidance, legal requirements or recognised best practice guidance about particular topics in order to assist inspection teams. They do not provide guidance to registered persons about complying with any of the regulations made pursuant to s 20 of the Health and Social Care Act 2008 nor are they further indicators of assessment pursuant to s 46 of the Health and Social Care Act 2008.
Brief guide BG004: Brief guide: capacity and competence in under 18s, July 2019 Review date: July 2020
Changes to the Mental Capacity Act and Deprivation of Liberty Safeguards (DoLS) -
Liberty Protection Safeguards
The Mental Capacity Amendment Act (2019) has now replaced the DoLS with the Liberty
Protection Safeguards (LPS). The intention is for the new LPS system to come into force on 1st
October 2020. When it does, the safeguards will apply to those aged 16 or over, instead of 18 and
over.
Children under 16 who are not Gillick competent
Children under 16 who are not Gillick competent cannot either give or withhold consent to
treatment. People with parental responsibility need to make the decision on their behalf.
In an emergency situation, when a person with parental responsibility is not
available to consent
In these circumstances, the child’s best interests must be considered and treatment limited to what
is reasonably required to deal with the particular emergency.
Access to medical records
In general, parents do not have an automatic right to full access to their competent child’s records
and the clinician is not allowed to disclose information without the child’s consent. However, a best
interests' disclosure could be possible where appropriate. Trusts should have procedures in place
for accessing medical records and there should be evidence that these are being followed.
Providers should consider whether the child’s consent is required for formal requests for records
under the Data Protection Act 1998, which made on behalf of a child by a parent or other third
party.
Brief guides are a learning resource for CQC inspectors. They provide information, references, links to professional guidance, legal requirements or recognised best practice guidance about particular topics in order to assist inspection teams. They do not provide guidance to registered persons about complying with any of the regulations made pursuant to s 20 of the Health and Social Care Act 2008 nor are they further indicators of assessment pursuant to s 46 of the Health and Social Care Act 2008.
Brief guide BG004: Brief guide: capacity and competence in under 18s, July 2019 Review date: July 2020
Appendix B: Parental responsibility
A person who has parental responsibility for a child has the right to make decisions about their
care and upbringing. Important decisions in a child’s life must be agreed with anyone else who has
parental responsibility.
The following people automatically have parental responsibility:
- All birth mothers
- Fathers married to the mother at the time the child was born
- Fathers who are not married to the mother, but are registered on the child’s birth certificate.
The registration or re-registration must have taken place after December 2003.
- Civil partners and partners of mothers registered as the child’s legal parent on the birth
certificate.
Others may acquire parental responsibility, for example through a court residency or parental
responsibility order.
Parental responsibility may be shared with the local authority if the child is the subject of a care
order.
